Financial Resources and Links for Families
- Program will fund, or partially fund, the purchase of assistive technology for individuals with intellectual and/or developmental disabilities. Maximum is $500 per person or family.
- Awards grants of up to $1,500 for families facing crisis.
- Provides academic scholarships to individuals with disabilities and siblings/peers residing in the state of Illinois.
- Five awards to enable people with disabilities to gain access to technologies which advance independence.
- Care coordinators who help families gain access to special services regardless of income. Services include (but are not limited to): accessing free diagnostic tests, finding specialized medical care, using insurance and All Kids/Medicaid, finding resources and information, developing a care coordination plan, communicating with doctors, school and specialists, preparing for transition. Financial assistance available based on income guidelines. Assistance available for specialized medical treatment such as surgery, medication, therapy, wheelchairs and hearing aids.
- Offers medical grants to families with young children who need access to medical services (therapy or costly procedures) but are either not fully covered or not covered at all through their commercial insurance plans (BCBS, UHC, Aetna, etc. DOES NOT include Medicaid) The grant offers up to $5,000 annually per child ($10,000 lifetime). Families do not need to be insured by United.
PUNS - Prioritization of Unmet Need for Services
In 2003, the Illinois General Assembly created a cross-disability database or waiting list for services for people with disabilities in Illinois. The State now collects information from families using a survey tool called the Prioritization of Urgency of Need for Service (PUNS). The PUNS is for anyone anticipating the need for services in the next five years.
How to get listed on the PUNS?
Call your local Pre-Admission Screening (PAS) Agency (or "ISC Agency"). They must fill out the survey for you with your input. You can identify your PAS agency on the web at http://www.dhs.state.il.us/OfficeLocator or see the list at the bottom of this document.
Your PAS agency representative will make an appointment to meet with you, either in your home or in their office. We are also working with PAS agencies to set up convenient "PUNS registration events" on weekends or at night. The process of filling out the form involves a face-to face conversation between the PAS agent and the person with a disability, a family member or a guardian, and any other person the individual with a disability wishes to include. The survey represents the combined perception of all these parties.
The PUNS survey must be updated on an annual basis. After twelve months, a notice should be issued to all parties of the need to update the form. If not updated, an additional warning will be submitted of the intent to close the PUNS record.
Also, please remember that inclusion in the database does not assume eligibility for services or guarantee the receipt of services.
Just what are Pre-Admission Screening agencies and what do they do?
Pre-Admission Screening (PAS) is really a service that is provided by Independent Service Coordination (ISC) Agencies. Eighteen such agencies are located around the state for easy access. You do not get to choose which agency you want to use. You must use the one in your geographic area. Pre-Admission Screening is a process through which eligibility for certain state-funded services is determined. Independent Service Coordination Agencies can help connect individuals with disabilities to services for which they have been determined eligible. They can also connect you to other helpful services. Independent Service Coordination Agencies are the backbone of the service system as they provide choices and options to people and their families as they access the maze of services.
Service Coordination Agencies (aka "PAS agencies")
Find which is yours by typing in your county and "Developmental Disabilities" here: http://www.dhs.state.il.us/OfficeLocator
|Options & Advocacy of McHenry Country||815-477-4720|
|Pact, Inc, Lombard||800-637-7181|
|Suburban Access, Homewood||708-799-9190|
|Service, Inc., Joliet||815-741-0800|
|Community Service Options, Chicago||773-884-1000|
|Community Alternatives Unlimited, Chicago||773-867-4000|
|Access Services Northern IL, Loves Park||815-282-8824|
|Community Service Options, Moline||309-278-0022|
|Western IL Service Coordination, Macomb||309-833-1621|
|Central IL Service Access, Pekin||309-527-7202|
|Livingston Co. 708 Board, Pontiac||815-844-7708|
|Champaign Co. Regional Planning, Urbana||217-328-3313|
|D.D. Service Metro East, Belleville||618-236-7957|
|West Central Service Coordination, Pittsfield||217-285-5227|
|Prairieland Service Coordination, Decatur||217-864-0494|
|Great River Service Coordination, Jacksonville||217-243-2330|
|Southern IL Case Coordination, Centralia||800-828-7422|
Call them TODAY and get listed.
Who knows, you may even find that you are eligible for existing services. Even if you are not, the State needs to know that we are out there and in need of help.
Adapted from Family Support Network