Specific Diagnoses / Medical Resources

Autism / ASD / PDD

Autism Speaks

  • Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Since then, Autism Speaks has grown into the nation's largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. We are proud of what we've been able to accomplish and look forward to continued successes in the years ahead.

Rush University Medical Center — The Autism Resource Center

  • The Autism Resource Center at Rush University Medical Center provides referrals for families who have a child with an Autism Spectrum Disorder. There are many areas that can be impacted by Autism, including language, social skills and behavior. Our mission at the Autism Resource Center ("ARC") is to link children and families with appropriate services in order to improve the development of children with Autism and related disorders. The ARC team has developed an on-line resource guide to help families find referrals, from evaluations to summer programs to therapeutic day schools. To find an appropriate referral, please visit us at www.rush.edu/autism.

The Autism Program Service Center at Easter Seals Metropolitan Chicago

Autism Society of Illinois

Chicagoland Autism Connection

Chicago Autism Resources

The Autism Program of Illinois (TAP)

The Northwest Suburban Autism and Special Needs Parent Support and Information Email Group

Have Dreams

  • Have Dreams aspires to help children with autism improve their abilities to learn, function independently and socialize so that they may realize their full potential and develop into contributing members of their communities.

 

 

ADD / ADHD

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

  • CHADD is a national non-profit organization providing education, advocacy and support for individuals with ADHD and was founded by parents of children with ADHD looking for information and support. Over the past twenty years, CHADD has developed a rich network of information and resources to help parents.

 

 

Hearing / Vision Impaired

Accredited Online Schools - Helping Students with Visual Impairments

  • Resources, tools and technology for students and families to foster school success. This online guidebook provides information on scholarships, accessing campus resources and assistive technology.

Chicago Lighthouse for People Who Are Blind or Visually Impaired

Illinois Advocates for the Deaf/Blind

Illinois Families for Hands and Voices

  • Illinois Families for Hands & Voices is a parent-driven, non-profit organization dedicated to supporting families that have children who are deaf and hard-of-hearing without a bias toward communication modes or methodologies. We want to provide Illinois families with the necessary resources, networking, and information in order to improve communication access and educational outcomes for their children. Our statewide activities, advocacy efforts, and parent/professional collaboration are all focused on enabling our deaf and hard-of-hearing children to reach their fullest potential!

National Family Association for the Deaf/Blind

 

 

Down Syndrome

National Association for Down Syndrome

  • NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. We offer information, support, and advocacy.

Family Ideas Network for Down Syndrome - Crystal Lake

Gigi's Playhouse

 

 

Behavioral / Mental Healthcare

Alexian Brothers Behavioral Health Hospital

DBSA - Depression & Bipolar Support Alliance

National Alliance on Mental Illness (NAMI)
(AMI) - Greater Chicago

OCD Chicago

Pillars

Thresholds Program for Family and Youth

  • Thresholds provides healthcare, housing, and hope for persons with mental illnesses in Illinois each year. Through care, employment, advocacy, and housing, Thresholds assists and inspires people with mental illnesses to reclaim their lives.

Thrive Counseling Center -Oak Park

  • Thrive counseling Center is constantly working to alleviate suffering and empower individuals and families to live healthier and more hopeful lives through a range of professional mental health and community prevention services.

Child & Family Development Center

  • The Child & Family Development Center (CFDC) is an interdisciplinary public service and research Center located on the campus of the University of Illinois-Chicago. This website is a resource for professionals, caregivers, and family members who want to learn more about early education, care, and development. CFDC is home to programs and professionals who work with and on behalf of young children with and without disabilities and their families.

 

 

Testing / Evaluations/ Assessments

Advocate Illinois Masonic Medical Center: The Pediatric Development Center

  • Call (773) 296-7340 for more information.

Advocate Lutheran General Hospital: Developmental Pediatric Clinic

  • Provides screening and evaluation for children with developmental delays. When appropriate, staff provides recommendations for therapies and family support services for children 3 to 18 years. Contact James Weedon, MD at (847) 723-2210.

Alexian Brothers Pediatric Specialty Group: Developmental and Behavioral Pediatrics

  • Provides a comprehensive medical, developmental, behavioral and psychoeducational evaluation for birth to 18 years. Contact Nancy Keck, MD at (847) 490-4222.

Children’s Memorial Hospital Outpatient Center: Developmental and Behavioral Pediatrics

  • Provides interdisciplinary evaluations for children with developmental and behavioral problems, including comprehensive medical, behavioral and developmental assessments for autism spectrum disorder for children birth to 6 years. Contact Dana Brazdziunas, MD at (800) KIDSDOC.

NorthShore University Health System: Center for Neurodevelopmental Disabilities

  • Developmental pediatrician screen and monitor any neurodevelopmental disability. Work with families and school on an appropriate care plan for children birth to 18 years.
    Contact Suan Fielkow, MD at (847) 570-2577.

Alan I. Rosenblatt, MD: Neurodevelopmental Pediatrician

  • Dr. Rosenblatt has three specialties: neurology, psychiatry and pediatrics. A comprehensive approach that addresses the needs of the child and family will be applied in a supportive and caring setting. Ages birth to 18 years. Call (847) 677-1818..

Rush University Medical Center: Developmental and Behavioral Pediatrics

  • Provides interdisciplinary evaluations for children with developmental-behavioral problems, including comprehensive medical diagnostic assessments for autism spectrum disorders. Ochoa provides a report with his findings and recommendations, which include: further medical testing, a treatment plan, and specific recommendations for school services. Ages birth to 18 years. Ask for Cesar Ochoa, MD, at (312) 942-5983.

University of Chicago Comer Children’s Hospital: Developmental and Behavioral Pediatrics

  • Provides screening and evaluation for children with developmental delays. Staff will evaluate child’s strengths and challenges and work with family to develop a care plan for ongoing developmental, behavioral and learning successes. When appropriate, staff provides recommendations for habilitative therapies (speech, occupational, developmental, physical) tutoring and family support services for children 3-5 years. Michael Msall, MD (Section Chief).

     Hearing/Audiology

Belle Center of Chicago

  • Provides assessment and speech and language therapy for ages 3-16. For more information, please contact Robin Schroud, Associate Director of Community Initiatives, at (773) 878-7868.

Ann and Robert H. Lurie Children’s Hospital of Chicago: Pediatric Audiology

  • The Audiology Department offers comprehensive, collaborative and individualized hearing healthcare to children from infancy to young adults to 21 years of age. They provide state-of-the-art audiological services to diagnose, treat and habilitate children with hearing loss using evidence-based practices. Services include: early detection of hearing loss; referral to an ear, nose and throat (ENT) physician for evaluation if needed; fiting hearing aids or providing cochlear implantations; assistive listening devices to improve understanding speech in noise; referral for aural habilitation therapy and speech-language therapy; collaboration with community based physicians, audiologists, aural habilitation therapists, speech pathologists, classroom teachers and hearing itinerant teachers; community resources and education to families and their hearing impaired children; a social network to children and families.

Loyola Medicine: Pediatric Audiology

  • Offers help for the hearing and communication needs of children from birth through age 18. Provides children and their families with the most advanced diagnosis and treatment services in the field of audiology. Loyola’s audiologists partner with pediatricians, developmental specialists, speech therapists, reconstructive surgeons and otolaryngologists to offer treatment and support for a range of problems, including: apraxia of speech, auditory neuropathy, auditory processing disorders, deafness, ear injuries, genetic hearing loss, language and speech delays, nonverbal communication, tongue thrust, voice and resonance disorders. Please call (888) 584-7888 to schedule an appointment.

Advocate Lutheran General Audiology Services

  • Our Audiologists at Advocate Lutheran General Hospital offer a wide range of diagnostic, hearing aid and assistive listening device dispensing and counseling services to patients of all ages. For more information, please contact the Parkside Outpatient Rehab Services at (847) 723-7500.

Resurrection Medical Center Chicago Audiology Services

  • Audiological services are provided for the diagnosis and treatment of hearing disorders, including screenings, evaluations, and hearing aids for patients of all ages. For more information, please contact Resurrection at (773) 792-5258.

     Neurological

Lurie Children’s Hospital: Division of Neurology

  • Provides comprehensive neurological assessments and follow-up testing for ages birth and up. Please contact Charles Swisher, MD at (800) 543-7362 to schedule an appointment.

Children’s Memorial at Central DuPage Hospital: Division of Neurology

  • Provides comprehensive neurological assessment and evaluation to determine diagnosis or provide follow-up testing for ages birth to 18. Please contact David B. Sperry, MD at (630) 933-1600 to schedule an appointment.

Elmhurst Center for Health

  • Provides comprehensive neurological assessments and follow-up testing for ages birth to 18 years. Please contact Rita Yadava, MD at (630) 530-5577 to schedule an appointment.

Glenbrook Hospital: Pediatric Neurology and Neurodevelopmental Disabilities

  • Provides comprehensive neurological evaluations to determine diagnosis and follow-up testing for ages birth to 18 years. Please contact Kent Kelley, MD at (847) 570-2577 to schedule an appointment.

Loyola Center for Children’s Health: Pediatric Neurology

  • Provides comprehensive neurological assessment and evaluation to determine diagnosis or provide follow-up testing for ages birth and up. Please contact Eugene Schnitzler, MD at (708) 216-3519 to schedule an appointment.

Neurotech

  • Specializes in conducting home-based EEG studies. A 24 hour EEG or longer (Ambulatory EEG) is the preferred method to properly diagnose seizure activity and frequency. Neurotech’s EEG technologists have experience working with adults and children, as well as individuals with physical and mental disabilities. Cal toll free (866) 374-7648; Main office (262) 754 - 0809. Ages birth and up.

Northshore University Health System: Pediatric Neurology and Neurodevelopmental Disabilities

  • Provides comprehensive neurological evaluations to determine diagnosis and follow-up testing for ages birth to 18 years. Please contact Kent Kelley, MD at (847) 570-2577 for more information.

Rush University Medical Center

  • Provides comprehensive neurological evaluations to determine diagnosis and follow-up testing. Please contact Peter Heydemann, MD and Elizabeth Berry-Kravis, MD at (312) 942-4036 to schedule an appointment.

     Vision (Pediatric Optometry and Ophthalmology)

The Eye Specialists Center

  • Full-service ophthalmic care facility caring for children and adolescents with special needs. Specialties include expertise in visual issues related to education, ocular coordination problems, strabismus, amblyopia, retinopathy or prematurity, genetic ocular diseases, as well as surgical care of pediatric eyelid and facial abnormalities, ptosis, cataracts, glaucoma and tear duct obstruction for children birth and up. Please contact Alex Khammer, MD and Benjamin Hendrik Ticho, MD at (708) 423-4070 to schedule an appointment.

Rush University Medical Center: Pediatric Ophthalmology

  • Provides comprehensive, state-of-the art treatment for pediatric eye problems. Services include: normal vision care, glasses, glaucoma, cataracts, strabismus, inflammatory conditions, retinopathy, retinoblastoma, and eye cancers for birth and up. Please contact Nancy Hamming, MD; Diany Morales, MD; Katherine Brito, MD at (312) 942 – 5315 for more information.

Lyons Family Eye Care

  • Provides comprehensive care of family’s eye and vision needs and a wide range of services by doctors and staff committed to using the most advanced technology and techniques to provide exceptional eye care. Experience with children with special needs. Services include: Eye exams, optical collection, contact lenses, vision therapy, infantSEE. Please contact (773) 935-2020 to schedule an appointment; or visit their location in 3250 N. Lincoln Ave, Chicago IL 60657.

Advocate Children’s Hospital: Ophthalmology

  • Leaders in pediatric ophthalmology, they offer state-of-art diagnostic, surgical and treatment capabilities for everything from simple eye conditions to the most complex cases. Services include: eye examination and testing, glasses, laser treatment in the nursery for retinopathy of prematurity, pediatric cataract surgery with intraocular lens implantation, silicone tube treatment of tear duct obstruction, surgical intervention. To find a specialist, call: (855) 312-KIDS (855-312-5437).

Neil N. Margolis, FCOVD

  • Eye care services, including eye exams and vision therapy for children and adolescents with special needs, ages birth to 18. Please contact (847) 255-1040 to schedule an appointment or visit their location in 1120 N. Arlington Heights Rd, Suite 200, Arlington Heights, IL 60004.

     Dental Care

Smile Dental Care – Sukhjit Kaur

  • Birth to 10 years. 7011 W. Archer Ave, Chicago IL 60638.

Tall Grass Dental – John W. Milgram, DDS

  • Dental care services for children and adolescents with special needs. 24111 W. 103rd St, Naperville IL 60564.

Fredric S. Tatel DDS and Associates, Ltd.

  • Dental care services for children and adolescents with special needs. 16345 Harlem Ave, Tinley Park IL 60477.

Yummy Dental – Grace Yum, DDS

  • Dental services for children and adolescents with special needs. 3500 N. Lincoln Ave, Chicago IL 60657.

 

 

Other diagnoses, syndromes, or disorders

United Cerebral Palsy (UCP)

  • UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.

Epilepsy Foundation of Greater Chicago

American Association for Klinefelter Syndrome Information and Support

The United Brachial Plexus Network

  • UBPN is a registered non-profit 501(c)3 organization devoted to providing information, support and leadership for families and those concerned with brachial plexus injuries worldwide. Available resources include: Our extensive website; Online registry, various outreach and awareness programs, and Outreach, our in-depth publication. Beginning in 2000, UBPN will also produce an annual comprehensive Resource Directory.

Spina Bifida Association of Illinois

The National Organization for Rare Disorders

  • NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them, and is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Tourette Syndrome Association of Illinois

American Brain Tumor Association

Brain Injury Association of Illinois

Shriner's Hospital

Spinal Cord Injury Association of Illinois

Oppositional Defiant Disorder

Sensory Processing Disorder

Fragile X Syndrome

Speech Disorders (Childhood Apraxia of Speech, Dysarthria, Orofacial Myofunctional disorders, Speech Sound Disorders, Stuttering)

Intellectual Disability

Obsessive-Compulsive disorder (OCD)

 

 

Other medical resources

Medlineplus

  • MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.